PAIR - Pitch An Idea for Research with PAIR

Pitch An Idea for Research with PAIR

The PAIR with PAIR pilot program provides front line clinicians – of any background, at any level – an opportunity to partner with a trained research team to explore a research question about a real-world problem faced by patients, families, and clinicians in the delivery of serious illness care.

Unlike traditional pilot programs that provide funds to researchers to independently carry out their studies, the PAIR with PAIR program is a partnership. We provide awardees with expertise and resources including:

*Mentorship of a PAIR faculty member

*Guidance on study design, implementation, and analysis plans

*Study oversight and monitoring

*Manuscript development support

*Research staff support (project managers, data managers, analysts, and research coordinators)

*Study-related expenses

Identifying Barriers to Palliative and End-of-Life Care in Huntington’s Disease

Dr. Pedro Gonzalez-Alegre is a neurologist who directs the Huntington's Disease (HD) Center of Excellence and co-directs the Parkinson's Disease and Movement Disorders Center. The uptake of palliative and end-of-life care among HD patients lags far behind patients with other serious illnesses, despite considerable impairments in function associated with this relentless and progressive disease. This study aims to qualitatively assess the views and attitudes of HD patients and their families toward palliative care and to quantitatively assess to role of race and socioeconomic background on the diagnosis of HD and care received, including end of life care.

Penn Home Palliative Care: Advanced Home Care for End-Stage Renal Disease

Dr. Niharika Ganta is the Medical Director of the Penn Home Palliative Care (PHPC) program and a board certified physician in Geriatrics and Hospice and Palliative Medicine subspecialties. The PHPC program provides home palliative care services to home bound patients with serious illnesses, including end-stage renal disease (ESRD) patients on dialysis. During the COVID-19 pandemic, telemedicine visits have been used to address symptom needs, provide psychosocial support, advanced care planning, and ongoing education regarding medical condition and trajectory. This timely study aims to assess whether these comprehensive telemedicine services and specialized support reduce hospital readmissions and improves the quality of life of ESRD patients on dialysis.

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Cycle 2 Awardees

Identifying Barriers to Palliative and End-of-Life Care in Huntington’s Disease

Penn Home Palliative Care: Advanced Home Care for End-Stage Renal Disease

Cycle 1 Awardees

Improving the Quality and Frequency of Advance Care Planning Among Hospitalized Patients

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Study of Therapeutic Exercise in Acute Respiratory Failure to Improve Neuromuscular Disability (STAND)

We generate high-quality evidence to advance healthcare policies and practices that improve the lives of all people affected by serious illness.